Recent Photos

Finally I took the time to figure out how to upload photos on here again. It always takes me way too much time- there must be an easier way!

Pregnancy kicking my butt! Napping while the kids watch their 1,000th movie!

Playing in the snow

Charley Beth!

My coloring helper! We have been working on all our thank you cards... we may get them finished in the next YEAR! Until then, if we owe you a thank you card, please know how VERY MUCH we appreciate you, your help, and prayers!

Good girl drinking up her broth!

Charlotte's "goofballs" (what she calls her meatballs! These have carrot and leek too). She likes to say, "I have lots of goofballs in my belly!"

Little goof eating her "goofballs!"

Playing picnic with Parker. Someday maybe you can eat all those foods!

My sweet girl!

One of Charlotte's sick days. Just miserable.

Charlotte

Parker

What happens when you tell them to smile!

Playing at Pumpkin Valley

Playing at Pumpkin Valley

Leaf pile fun

Love these little munchkins!

The Cost of GAPS

Many people ask me why it's so expensive to do GAPS when Charlotte eats so little food. I thought it might be helpful to explain our needs so folks will have a better idea of how choosing to do this diet has affected our family, and why we are SO grateful for the help and support we've been given.

As far as Charlotte's diet goes, right now she can eat organic, free-range turkey, organic, grass-fed beef, venison, and organic sweet potatoes. Organic turkey at the farm costs $2.99 on sale. The side of beef we ordered previously was $1,000, and the quarter we just got was almost half that. (Not buying in bulk means astronomical costs. Um, organic steak at $17.99/lb?!) The organic sweet potatoes are $4.69 a bag, which contains 4-5 sweet potatoes. To give you an idea of how much Charlotte eats- she'll easily eat her broth, a pound or more of meat, and 2-3 sweet potatoes each day.

Our food costs are also higher because Parker and I (and CJ most of the time by default) are eating "Full GAPS" meals. This means nothing processed, no grains, no sugar, and everything as clean as we can afford. There is no 99-cent box of macaroni for dinner in this house. There are no shortcuts, only preparing everything we eat (pretty much) from scratch. We rely heavily on local farms and were thankful to have a garden this past summer. Things like raw honey, coconut oil, almond flour, and other new ingredients, all cost so much. I make a lot of soups with bone broth and vegetables, which help keep costs a bit lower. Yes, it's expensive to eat this way, but our family needs to heal. My gut health is passed onto the kids, and making sure I, this baby, and Parker, also get what we need to be as healthy as possible is also a priority. And CJ! He hasn't escaped my health-nut cooking; I'm doing him a favor! His taste buds might not always agree though!

Plus, after the hours and hours (... and hours!) I've spent researching food, ingredients, the effects of foods on our bodies, brains, and health, I could not in good conscience feed my family the way I used to. I have had to learn a whole new way to cook. Everything I have been taught in health classes growing up and even in college, has been thrown out the window. Things I used to view as evil I now embrace (organic butter, high quality animal fats, salt- though now we use unprocessed sea salts). Did you know some kinds of boxed cereal actually have magnetic properties, and contain things like paint thinner? That white sugar has a similar physiological affect on the brain as cocaine? That fluoride used to be sold as rat poison? I could go on and on all day about what I've learned, but everyone must make their own choices. I only hope that feeding our family this way will set the kids (and us) up for healthier futures. And of course, we feel better!

More costs we've had since we started GAPS include getting rid of things that are potentially toxic in our home. We have replaced dozens of things- cookware (we now use glass, cast iron, stainless steel), getting rid of plastics, using safer soaps and cosmetics (Dr. Bronners for Charlotte, homemade lotions, homemade toothpaste), laundry soap, household cleaners, medicines (we use natural remedies now, homeopathic medicines, essential oils), etc. We purchased an air purifier since we're in a duplex and need to clean air coming from our smoking neighbors ($145), a water purifier to remove chemicals that hinder healing ($250). We do detox baths with epsom salts, apple cider vinegar, and baking soda. Charlotte's diapers are more expensive since we buy ones free of chlorine and other chemicals. (We've tried unsuccessfully to use cloth- she just has too many rashes. We do this some of the time, but not as much as we did with Parker, and hopefully will our next baby.) All costs like this add up. I've had to order a few books to help us along this journey too.

Then there is the cost of our supplements. Fermented cod liver oil, vitamins/minerals, fermented vegetables (since I haven't been able to keep up making my own), therapeutic strength probiotics (about $40/box), etc.

To keep in touch with our Australian doctor, it's $180 per hour, plus $70 per hour for follow up emails/calls. Insurance doesn't cover any of this. If you remember from our early posts, the medical community has little to offer us anyhow in terms of real hope for Charlotte- we'd be looking at possibly a lifetime of elemental formulas, experimental drugs, repeated scopes and biopsies, etc. Yes, insurance would cover some of this, but what kind of life would that be? We're interested in real healing. We want to heal and move on with life, not deal with this for a lifetime. So, hopefully this will be a small cost to pay for better health for Charlotte and all of us.

I hope this helps explain a little background behind why finances are tight for us. Also for those of you who don't know us well, CJ spent the past 2 1/2 years in grad school, only working part time. Then he went four months without a job this summer. Now thankfully he's employed, but let's be honest, he works at a public school. Then sprinkle in college debt and other basic expenses. I'm not complaining, just starting the facts. It's humbling to struggle to provide for your family's basic needs. But God's faithful, and we're grateful. Someday we'll be in a better position (maybe, hopefully?!) and we'll be able to be more on the giving end rather than the receiving end, and that'll feel really good. For now, we'll continue to live carefully within our means, share what we've been blessed with, make good choices, and pursue being a healthy family.

For all of you who have helped us and prayed for us, we thank you. God hears and answers our prayers, and I'm thankful He's using you all to accomplish His work here.

Long Overdue Updates

I apologize for not updating this in so long. I have been living under a rock called "morning sickness" the past few months! Things are slowly improving. Mornings are still dicey, but that's small potatoes compared to constant nausea, vomiting, and exhaustion!

Since moving into our apartment and the initial busy time of unpacking, hosting Charlotte's birthday party, and the yard sale and bake sale, not much has been accomplished otherwise! Our children have presumedly lost some brain cells watching "Wee Sing in Sillyville" and other videos countless times, while I've been sick. The autumn leaves have come and gone, and the deep chill of winter is starting to set in. I can hardly believe we'll celebrate Thanksgiving next week, and then we'll launch into the Christmas festivities.

We've been on the GAPS journey for nearly nine months now. Charlotte's been -mostly- stable. I have not been able to pay as much attention to her supplements, etc. as we've been functioning in survival mode. She is mainly eating beef, turkey, venison, and sweet potatoes. She has been tolerating leek and celery boiled along with her broth.

We have tried carrots and they seem to be agreeing with her although she will hardly ever eat them. I have trouble figuring out whether she avoids foods that bother her tummy or whether she doesn't like the taste or texture. I'm not pushing it, but continuing to offer them to her. We trialed carrots quite a few times since starting GAPS, and each previous time they made her immediately react. This time she isn't getting any outward signs of intolerance and the carrots haven't kept her up at night in pain. So that's progress! I have to remind myself of these little victories.

We have been juggling Charlotte's foods also, which has been complicating things. We ran out of her beef about a month ago and have been waiting to get some that we ordered from a family friend. The local farm we've purchased from before has been out of beef too. We were given about 15 packages of mule deer, whitetail deer, and moose meat from my stepdad's cousin who is a big hunter. While this has been a helpful interim, she is also reacting mildly to the moose and mule deer. I have had to ignore some of her mild reactions simply because we don't have another safer option right now. We have been told that if she is showing reactions through her skin that is an indicator of the internal inflammation we can't see. It's best to avoid things like this, but some times you just have to do the best you can. I am thankful she is only having skin reactions and irritability rather than sleepless nights, but still, I'll be glad when we have her safe standbys!

My brother has been so generous at sharing their venison. Not only is that a safe food for her, but it's her absolute favorite! I really think she loves Uncle Kevin so much because she knows he gives her deer meat! Every time I see him I don't mention anything, but he will give us a few more packages just in the nick of time when we need meat for Charlotte. As often as I can, I've been out hunting with Kevin trying to get a deer for our freezer. I have been trying to go out on Saturdays and some afternoons when Kevin gets out of work. One of my nieces got her deer opening day, which has been perfect because she loaned me her hunting gear and she's been watching the kids at their house so I can hunt! Talk about a blessing! I took the safety course a few months ago, so this is my first year going out. Kevin has a lot of land and he's been great about getting me more comfortable hunting. We have jumped some walking in and out, and I had a great opportunity to get a doe, but I don't have a doe permit. I'm still waiting (and praying for!) a nice big buck!

Even tonight we used the very last package of meat and I got a message from my cousin who found a bunch of deer meat in her deep freezer that they didn't want. I went right over to pick it up. God is really, really good. He provides what we need, when we need it. I am just so in awe of this lately. Even with little things- our van's been needing an oil change and our engine light came on the other day. While visiting CJ's grandparents, his grandpa asked if we would like a free oil change coupon he found. These little tokens of generosity are speaking to my overwhelmed heart, reminding me over and over of God's reassuring presence and love for us.

Parker's behavior and attitude have been very challenging lately. This has been all consuming. I will leave it at that. We would appreciate prayers about this- and for wisdom, patience, and energy to deal with this. I trust God will help me through all things, and this just goes to show me how much I do NEED God to help me. Even reading over this blog post, I can tell I'm not as chipper as I should be. I just feel totally spent lately- like I'm bobbing in the water, clinging to my buoy (Christ). The waters have been rough!

CJ's job is going very well, and as he tells everyone, he's "not bored!" I think the school is a good fit for him. He is continuing to do drill weekends with the Marines in Massachusetts and look into more opportunities with the Reserves.

I'm thankful for my healthy pregnancy- Baby has been very active and his/her heartbeat has been nice and strong. I am excited about the midwife practice I'm going to. My belly is "popping" and I'm enjoying feeling my littlest one wiggling about. I'm 17.5 weeks, so time is passing! Baby is about 5 inches now. We have our big ultrasound scheduled for the beginning of December, but we're hoping to keep the gender a mystery till he/she is born. Now to decide on some names- Parker has lots of suggestions, including "Achan" (one of the spies who went to Jerico) or "Sneaky." He's convinced it's a boy, and so is CJ. My guess is girl, but I'm not sure I can trust my instincts since I was wrong with both Parker and Charlotte! :)

We are all settled into our new apartment (aside from hanging some pictures and organizing the tornado-like attic!) We had to invest in a new water filter called a Berkey to eliminate the gunk in our town water (fluoride, chlorine, etc) that Charlotte is not supposed to have. We also had to get an air purifier and had the landlord change our air filters. Our duplex neighbors are smokers and we had an issue of smoke transferring in here through our heat vents. Thankfully we have not had any more problems with that since. The first month we lived here the kids and I were constantly waking up at night coughing. The night after using the purifier and having the vents cleaned we slept without a tickle in our throats. Trying to cut down on all the environmental toxins is one way we can really support Charlotte's system- since the less work her body is doing processing and try to get rid of these toxins, the more her body can focus on healing and digesting her food properly. Things like water and air quality might not seem like a big deal, but to someone as sensitive as Charlotte, they truly are. I'm grateful we had the funding to be able to purchase these things.

We're enjoying being near family and having some folks to call upon when we need a visit or some help. I've made some pitiful pleas lately and my mom and Judy have been quick to rescue me with kid help, errand-running, even washing my dishes, etc! We've even had friends bring CJ dinner! (Poor guy hasn't had much in the line of home-cooked meals lately!) We have met some great new friends through the homeschool group I joined and have been enjoying some playdates with like-minded Christian friends. Parker and Charlotte love their cousin-time, and library storytime too. We're slowly getting into a routine. I'd like to get going on some more homeschool activities but thus far motivation has not = energy levels!

We have been collecting things for our Operation Christmas Child shoe boxes. The kids have helped me fill them with things they might like to get. As Christmas nears we're trying hard to get them focused on others and giving vs. getting. I am making Jesse Tree ornaments to do an Advent calendar with them this year. Each day up till Christmas they get to open a new ornament and we will read Scriptures that will take them from the Creation of the world up through Jesus' birth. It's been humbling to be on the receiving end so often lately, and I wish I had more time/energy/resources to give back. I hope the kids will realize the joy of giving and be appreciative of all we are blessed with!

I still need to upload photos and share about the AMAZING fund-raisers we had. But I'll have to save that for another day! I have about 30 thank you cards also waiting to be written out. We just cannot express how grateful we are for God's provision, grace, and the beautiful hearts of folks who have been so kind to help us, pray for us, and encourage us through all of this. We have so much to be thankful for!

I'm barefoot!

Because God has knocked my sock off!!!!!!!!!!!

I hope to be able to post this week about the amazing yard sale and bake sale we had, but I just wanted to say, God is faithful, and He cares so wonderfully for us that it makes me want to cry sometimes (who am I kidding, I'm pregnant, yes, there's some real crying going on here!).

Some amazing testimonies and photos to come soon!

The Dust is Settling!

So much has happened lately, and we haven't had internet access to update the blog. So I'll probably write a few new posts as I get the chance. But first I'll check in to say where we're at.

The dust is finally settling around here. We're all moved into our new apartment. It is so wonderful to have our own space and know we're not hogging CJ's parents' house anymore! The kids have adjusted well and love their new rooms and finally having all their toys and books back. We have so much more room than we had in our old apartment. We were disappointed we didn't find a house of our own on the timeline we had, but we're thankful God opened this door, and are confident that He'll show us the perfect house at the right time. For now we'll enjoy this place! I'm enjoying being back in the town I grew up in, especially at its prettiest time, autumn. We can walk to the library, post office, park, and fire station so the kids are pleased about our location too. And, we're close to CJ's job and our families. :)

We hosted a birthday party for Charlotte a week after we moved in. I can't believe she's 2! At her request, we had a "cow party!" for her. We only invited immediate family, so it was small but sweet. We had cow balloons and purple decorations (her favorite color). She was so happy. I couldn't make her a cake, but I cut sweet potatoes into cow shapes with a cookie cutter, and CJ cut some venison into little hearts for her. I'll try to add photos soon so you can see the birthday girl!

One of the gifts Charlotte opened was a Big Sister Book! That's right, we're expecting another baby! We are thrilled that God is sending another blessing to us. Parker and Charlotte are excited and seem to understand. Charlotte LOVES babies and Parker's already a pro at this big brother stuff. The Baby is due May 2nd. I am just moving into my 13th week, so I'm hoping the constant yucky morning sickness I've experienced will soon pass. That certainly has complicated things, with our move, and everything else going on, but God's getting us through it! The kids have watched more than their share of movies lately, while I lie green on the couch, but I'll try not to feel too guilty as I'm sure soon I'll have more energy and feel better.

I have relaxed my diet a bit now that I'm not nursing Charlotte anymore. I haven't had much of an appetite, so I'm just doing the best I can. I'm determined not to worry about this baby's health. God knows what He's doing, and He is in ultimate control of the baby's health, and not me. Worrying or over-analyzing everything I do and eat will not help. I will continue eating gap-sy foods, but I'm giving myself more freedom to veer from it once in awhile. Of course, we'll hope and pray for a beautiful, healthy baby, but we'll be thankful for the carefully-chosen and unique child the Lord has decided to give us. I am so excited for our little growing family.

Charlotte's been at a standstill with her diet. I wish I could report more progress. These days she's eating organic sweet potatoes, turkey, beef, and venison. Once in awhile if I can find green beans she will eat a few, and we keep trying leek and rutabaga, but she mostly refuses them. We have backslid with her supplements too with all the activity lately in our family. We recently tried broccoli, and a week later we're still waiting for her diaper rash to fade. The doctor just suggested trying to add in something, anything, especially the more colorful veggies. I think we'll try kale next.

We have had some wonderful fund-raising events in Charlotte's honor, but they are worthy of their own posts! I'll try to write about them soon!

As always, thanks for reading, supporting us, and for the prayers! Keep 'em coming, please!

One of those days

Ugh. Today has been one.of.those.days. One of those days where you want to just crawl back into bed, pull the pillow over your head, and stay there for a month. But the "Mummy, Mummy, I need you," though muffled, is still loud and incessant enough to pull you out of your retreat.

Days like today I just wish we were one of those "normal" families. You know, feed the kids a bowl of cereal with blueberries for breakfast, munch on PB & J and apple slices for an impromptu lunch at the park, stop for an ice cream cone on the way home. Where my my insanely picky child who feels the need to whine and complain about everything just happily eats what's before him. Where my insanely limited child can sink her teeth into a variety of foods, carefree and happy. Where I can eat a bowl of spaghetti with CJ at a restaurant while someone babysits the kids (hey, this is fantasy, I might as well imagine us on a quiet, relaxing date!)

Bam. Here is my reality. Trying to wean a child from nursing so I don't feel the underlying guilt of the possibility of me making her sick from something I've eaten. Or worrying about weaning her and her health plummeting because she's no longer getting the nutrients available in my milk. Heating up pot after pot of broth and boiled meat. Always the same thing. Running out of meat and needing to thaw it in a bowl of water while your toddler screams in hunger. Paying an arm and a leg for this precious food. The stress of how to pay for it all. The stress of knowing how sensitive she really is, and wondering if she will ever get healthy? If we will ever be moving forward by leaps and bounds? If we are doing the right thing. But what choice do we have? Other child only wants toast, bananas and peanut butter, and getting him to eat any.thing.else. is a WWIII battle. Anywhere we go I have to think through to cook food in advance, and pack it. I make 3 meals every mealtime, every day. Something for CJ and I, something healthy that Parker will eat with less resistance and avoiding his allergies, and boiled meat and stock for Charlotte. There is no "fast food" (24 hour yogurt must be made once a week, 6 week sauerkraut, broth boiled 2.5 hours, nothing processed, nothing out of a package). There is no going out to eat, unless you want to cheat or hit up the salad bar at Whole Foods. There is the weirdness of watching other people around you eat whatever they want, feed their kids whatever without a second thought. The knowledge that you are now one of those "crazy food nuts" and you really don't have much choice in the matter.

Yes, it may seem like I'm complaining, for that I'm sorry. But mostly I just need to vent and get this out of my system. I need to process. I don't want pity, I just need to be real.

Because here's the thing. I KNOW God gave these children to me, with their specific needs, characteristics, problems. I am THANKFUL for them every day, and HUMBLED that He chose me, a blundering fool, to take care of them. I wouldn't trade my sweet, funny, smart, beautiful, quirky kids for anything. Every day I do my best and try not to compare, complain, worry, feel guilt, or get overwhelmed.

But some days I fail. I compare myself, my mothering skills, my patience, to those around me. I compare my children. I wonder what I'm doing wrong. I complain, and cry out to God to change things, because I feel so powerless. I worry. I worry about what I'm doing, not doing, what I should be doing. I feel guilty. Maybe it's all my gut health that caused Charlotte to be so sick. Maybe the way I react to Parker is causing him to fry my every nerve. Then I'm sucked into this pit of feeling overwhelmed, and alone, with only God and CJ who truly understand the depth of all this stress.

Most days, I give all this YUCK over to God. I shrug it off and don't let it bother me too much. But some days it creeps back upon me, making my head swirl and spirits sink. Days like today.

So in these moments I do the only things I know. Pray. Trust. Hang on.

Know in the back of my mind, I need to have hope, even if I don't feel hopeful in that moment. Know I need to let go of all the muck and find my joy again. Keep things in perspective. Be positive. Be thankful. Let God wipe away my doubt, fears, guilt, worry. Embrace His peace. Remember He never gives us anything that He hasn't carefully considered and deems worthy of our good and His glory. Know that God loves us more than the devil can shake us, and we can never be snatched out of His hands. His power, His healing touch, His comfort- it's all right there, and He gives to those who freely ask. He moves on His time, and he never makes mistakes. Remember it's not all about me; in the end, it's about Him. This is one small way where I can be a testimony to His faithfulness, His grace, and His love.

Tomorrow will be another day.

So, please know, when I say I need you all to pray for us, I mean it. When I tell you how much those prayers mean to me, know that I really am thankful. Because days like today those prayers keep me afloat. I know there are people who love us, who fervently and faithfully pray for us, who don't look upon us in judgement that we don't have it all together, but in love. People who know our struggle is real, and and just not blown out of proportion. There are people I don't even know who pray for us. And I know God hears every single one of those prayers. That love is transferred to me on days like today, where God simply puts his hand in mine and walks through this with me.

Crazy Month and Skype Time with an Australian Doc

It's really late, but I can't sleep, and I figure I may as well do something more productive than toss and turn in bed. We just finished a Skype conversation with a doctor in Australia, and my mind is full. And as Parker likes to say now that we've read Charlotte's Web, "When your stomach is empty and your mind is full, it's always hard to sleep."I keep meaning to update this, so here goes it!

Since my last post, things really seemed to spiral out of control with Charlotte. We were backtracking, we were miserable, and in general, everything was a mess. It's been a messy, stressful month.

On the homefront, CJ is doing well at his job and settling in. After house hunting all summer and waiting on financial matters with a few banks, we were in a holding pattern and nothing was working out in the right timing. We looked at an apartment in Alfred (where I grew up, about 20 minutes from CJ's job) on Saturday. We were told there were 7 other families who looked at it that day, and we would hear an answer over the weekend. Well, we didn't hear anything, so we got to thinking they probably wouldn't offer it to a family with kids if they had a choice. But we knew if it was supposed to be the place for us that God would work it out. Monday morning at 7am I got an email offering the apartment to us. So, while home ownership was what we had our hopes set on, we know God's timing and provision is best. This will allow us to move out of CJ's parents' house soon (Oct 1), which needed to happen. It will also give us time to get settled and grant more time for God to show us where He wants us long term on HIS timeline. And one more major thing finally planned out. So, we are thankful for a clean, safe place, and look forward to making it a home. God gives us what we need, always.

Back to Charlotte, in the midst of trying to secure housing, and CJ getting into his new routine at school, Charlotte was just feeling lousy. She seemed to be reacting to everything, regressing on the diet, and I didn't really know why or how to support her or help her move forward. We had many many HARD days with her crying on my hip- long days after long sleepless nights, cranky, irritable, irrational, not fun. I knew we needed to get some professional help to help me know where to focus and what to do next.

I got some recommendations from the folks in the Facebook support group I'm part of, for some specialists who work long distance. I spoke/emailed with a few and decided to get help from a doctor in Australia who specializes working with babies and kids with severe digestive disorders and healing them through nutrition.

Let me say, for the thousandth time, God is faithful. We do not have two cents to rub together right now, let alone more money to sink into this extremely expensive diet, supplements, or even the money to talk to a doctor. Many people have asked me, and no, insurance does not cover anything we are doing. It is not mainstream medicine, and the medical community in general has nothing to offer us. Anyways, we were given a generous donation so that we would be able to actually talk to this woman all the way across the world who might help us.

We also have been approached by two different folks who would like to help us fundraise to come up with the money we need to continue helping Charlotte. I will add more details soon in another post, but stay tuned for a way you may be able to help, in addition to your prayers which we covet. If you live locally, please consider helping us by donating items you don't need, or crafty items you've made to a yard/craft sale, or baking something for our bake sale next month. I am humbled to receive these kinds of generous offers of practical ways folks can help us. The strain of trying to figure out how to afford everything is a considerable stress for us, and we simply don't have it. So we are incredibly thankful when God provides in creative ways through loving folks around us.

Okay, so tonight was the big night where we got to Skype with a doctor in Australia. In addition to enjoying her wonderful accent, we really felt good about talking with her. She told us in the beginning that she expects nothing less than a 100% recovery from Charlotte and she hopes soon this challenging time will all be a "deep dark memory." That alone was comforting to hear. When we spoke with a specialist in Boston we were told Charlotte's cases was one of the hardest types to heal, and it would be a very long and painful process the entire time. Talk about bleak. It was really depressing. With Sally Gray, this doctor from Australia, I felt a refreshing hope.

Sally talked about the different approaches to healing a child like Charlotte- the Boston doc's way being one- where you push and push and push, throw healing things at it, and eventually the body will respond and heal appropriately. Sally says this may work, but it'll be painstaking and uncomfortable for her and us. She does not think this is the best way to heal Charlotte. Her body is too fragile and sensitive for this.

What she does think is the best way, is finding a balance with Charlotte. Her body is reacting and responding and we need to listen. Pushing will only cause her body to be in a state of fighting, instead of where it needs to be, in a state of healing. Our immediate focus will be to bring Charlotte back to baseline- to the most limited foods and most healing ways of cooking them, until she is back to herself again. We need to focus on increasing her consumption of meat stock and go back to boiling her meats in stock for now, sticking with foods we know are safe. Eliminating anything else from her diet or environment that may be hindering this (most notably the probiotic she's been struggling with).

Once we are back to happy, contented Charlotte for a week or so, we will focus on trying to increase healing foods. She encouraged us to keep an open mind and not to consider only GAPS recommended foods. She says for kids like Charlotte, there is not a one size fits all approach, and right now we need to focus on nourishing and balancing her. We need to let Charlotte be our guide here. This will take time, and we need to go as slowly as she needs us to.

She really senses that Charlotte may indeed have an eosinophilic gastrointestinal disorder, and in that case GAPS may not fully work when you follow it as the protocol suggests. She says we may need to look outside that framework to find ways to heal her that will be less invasive (i.e. healing transdermally as opposed to continually trying to heal through foods which her body keeps rejecting). It's not that this approach will not work, but it makes it more complicated, and she says we should keep an open mind.

We spoke about how to ensure Charlotte is getting the nutrients she needs on such a limited diet, especially as I wean her, (we have worked down to nursing only twice daily) and she is going to send us some recommendations. One idea was to give her some Elecare (an elemental formula) but she said that was not necessary. We need to make sure she's getting the minerals, fats, and amino acids, and much of this is actually delivered to her through the meat stock, in the best form her body can recognize and break down. So, I'm not sure we need to worry all that much, because she said this period of limited foods is a transient time, and if she's healing now, soon she will be able and ready to take in more nutrients from a bigger variety of foods. This set my mind at ease a bit.

She will also email us information about other minerals and good things we can use on Charlotte's skin to get nutrients in. Where her body attacks so much when ingested, we may need to pursue getting good stuff into her a different way. Like the magnesium oil supplement we spray on her feet every night, other things are absorbed well through the skin. Yogurt and probiotics applied over her diaper area will find their way up into her digestive track. Our body is made up of so many microbes- she said there are 10 times as many microbes in and on us, as there are cells to our bodies! So we will consider other ways to support her body in getting more weapons in her arsenal of good probiotics to fight against the bad microbes in her gut.

We talked about doing some testing with the microbiome project to find out a better picture of what is going on internally, but this may or may not be helpful, for the cost. In any case, we would still need to proceed the same, slow and steady.

There is even a new therapy that is gaining in recognition- forgive the terrible picture which will come to mind- but it's taking healthy gut flora (within poop!) from a healthy donor and transplanting it into the bowels of a child like Charlotte. I have not done research about this but apparently it can drastically and more quickly improve the state of the gut. Shudder. This just plain grosses me out! But we'll read up on it!

Sally will be able to help us proceed from here. She is going to send me a detailed report and recommendations which should help us and we can contact her whenever we need via email or Skype. I was so thankful for the opportunity to talk to her and hear that Charlotte is on the right track, and we WILL work through this. Just knowing how to focus and knowing I should not push through symptoms takes so much guess work (and stress) away from me. And will make this a more comfortable journey for Charlotte. Poor little kiddo. She has been through so much already. I hate thinking how terrible she must be feeling; I don't even really know since she can't explain it yet. What a trooper.

I know I've rambled a bit, but it's 1:30 in the morning so I think I'm entitled! So, that's where we're at, in a messy little nutshell, and as always, we appreciate the prayers and encouragement more than you know. God is setting Charlotte up for a great testimony. I cannot wait to see how He will heal her and work in her life, and ours, as we go through this. We have much to be thankful for, things could be a lot worse, and we know nothing that happens to us has not been filtered through the loving hands of our heavenly Father. He will work all of this out for His glory and our good! Sending love and thanks to you all!